TABLE OF CONTENTS: List of Tables ix
Preface xi
Acknowledgments xv
PART 1. INTRODUCTION 1
Chapter 1. The Impact of Cystic Fibrosis on Well Siblings 3
1. Approaches to the Study of Well Siblings 3
2. An Ethnographic Approach 10
3. A Framework for Analysis 12
PART 11. PORTRAITS IN WAITING: NINE FAMILIES 15
Introduction 17
Chapter 2. The Daleys 19
Chapter 3. The Shermans 26
Chapter 4. The Farringtons 39
Chapter 5. The Campbells 48
Chapter 6. The Reynoldses 59
Chapter 7. The Chases 74
Chapter 8. The Woodwards 90
Chapter 9. The Fosters 100
Chapter 10. The Baileys 122
PART III. CONTAINING THE INTRUSION 133
Chapter 11. Parents' Responses to the Care the Ill Child Requires and the Concerns the Child's Condition Engenders 135
1. Issues and Strategies 137
2. Strategies, Normalcy, and Control 186
Chapter 12. Well Siblings' Views of Cystic Fibrosis and Their Ill Siblings' Condition 197
1. Well Siblings' Views 197
2. Formation of Well Siblings' Views 212
Chapter 13. Well Siblings' Relationships with Parents and Ill Siblings 215
1. Resources and Communication 216
2. The Well Siblings' Position in the Family 260
Afterword: Meeting the Needs of the Well Sibling 265
1. General Guide lines for Clinical Intervention 266
2. Communication in the Family: The Case for "Shuttle Diplomacy" 267
Glossary 273
Works Cited 275
Index 295
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